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This messageboard is to provide compassion and support to Australian families affected by TTTS !

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Vivienne Ashdown

Vivienne@snorkel.co.nz


Sep 16, 02 - 4:51 PM
Re: Loss of a beautiful angel


I am sorry to hear about your loss, I too lost a daughter Brooke Hayley due to TTTS 9 years ago and only found out when they were born. This is the first time I have actually been able to get any information about the condition after all this time. My daughters were identical and it can be a blessing and a curse. You will find Birthdays a box of mixed emotions as you will be grieving and celebrating. I found I could only cope by visiting Brooke the day before as it was too emotional for me and I didn't want to spoil it for Ashleigh Birthday. I also have a sister who also lost a twin before she was born so I have a least her that I can share my feelings with, although we have only truely done this once and had a big bawl about everything. Hope you find a friend who is close to your area for support.

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Replying to:

I have recently lost a beautiful baby girl Caitlyn Michelle to TTTS. Thankyou so much for this wonderful website. I live in country WA (near Bunbury) and support, information etc is a little hard to comeby. I hope to gain new friends who have experienced similar heartache. I am lucky that our surviving twin Hayley Madison is doing extremely well. I am in the early stages of coping with Hayley only 6 weeks old. Unfortunately we didnt know that we were suffering from TTTS until too late. Caitlyn died 10 days before she was born. Hope to keep in touch


Lana



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