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TTTS Australia Inc. MessageBoard
This messageboard is to provide compassion and support to Australian families affected by TTTS !
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| Viewing Page 1 of 1 (Total Posts: 6) |
| Author | Comment |
ShaneA
Aug 24, 06 - 9:52 AM |
Scans to diagnose TTTS
Hi Everyone, My wife and I found out we are having identical twins (13wks) and we were told of the possibility of TTTS. Our OB has said after the 20week scan she suggests having monthly scans to monitor the babies. But after reading some of the heartbreaking stories on this message board, it seems that TTTS can occur before 20wks. I am wondering if anyone else has had an Ob that recommends more frequent precautionary scans. Shane |
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Dale
Sep 1st, 2006 - 7:42 AM |
Re: Scans to diagnose TTTS
hi there, i dont know why someone would go and give you unnecissary stress like that! telling you about a relatively rare condition when theres no evidence of it seems to me to be a little nasty to me  personally, we're grateful for every minute of the pregnancy that we didn't know about TTTS and therefore worry about it, it was worrying enough for the 12 weeks after diagnosis before they were born! i would say that the OB is right in getting you to do an ultrasound at around 20 weeks, apparently that is the most common time for it to begin (even shortly after) and even if things DO get pretty bad, you WILL notice it. apparently (our boys never got to this stage) when it starts getting dangerous, your wifes belly will swell quite quickly and quite noticably. but above all, i say try to forget about the things that can go wrong and focus on enjoying the pregnancy. we had all together too many sleepless nights for all the wrong reasons, if you can avoid this for a while, do so 
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Joanne
Jan 24th, 2007 - 9:01 PM |
Re: Scans to diagnose TTTS
Hi, This message is not for Shane as I am writing this message a long time after Shane's email and he's probably had his babies by now. But, just in case someone is reading this message, I just want to comment on Dales response to Shane. Dale suggested that Shane shouldn't be unnessarily stressed, that TTTS is a rare condition and that the Ob is right in starting ultra sounds from 20 weeks. With all due respect to Dale as I''m sure he was trying to be helpful and supportive, I would just like to say firstly that once you have identical twins, the chance of you getting TTTS is between 10 and 15% - so if you are having ID twins its no longer a rare condition, its a real probability. Secondly, we were diagnosed with TTTS at 16 weeks and lost our two girls at 18 weeks. My Ob said right from the start that scans should start at 16 weeks, so make sure your doctors are doing this as well. And finally, you need to be alert (maybe not alarmed). Its better to be unnecessarily stressed and have your babies still alive than feel that you were complacent and didn't do all you could do for them. Believe me, don't assume it won't happen to you. The swelling can happen really quickly and you can often mistake it at least initially for the twin pregnancy and not TTTS. The hardest thing I am going through at the moment is wondering whether I could have done something more to save my babies. Please don't be complacent and assume it won't happen to you. i would give anything to have my time again and I would gladly be unnecessarily stressed than be without my babies. Hopefully, everyone reading this will have a good outcome with TTTS, but just in case, I hope I have made you more aware of the dangers of TTTS and the risks of taking it for granted. TTTS could be diagnosed early or it could strike at any time during the pregnancy so please make sure you are seeing a doctor that knows about TTTS. Best wishes to you all for a safe and suggessful pregnancy Jo |
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Amy
Jan 26th, 2007 - 9:22 PM |
Re: Scans to diagnose TTTS
Wow. I too realise I'm too late to reply to Shane, but I'd just like to strongly second Jo's comments for the sake of other readers. Soon after my (fraternal b/g) twins were diagnosed with TTS, a friend of a friend having twins was told that because her twins were fraternal there was no need for further scans after 20 wks. At my urging, our mutual friend persuaded her to get a 2nd opinion - thank god!! Although there was only a small size dif at 20 weeks, there was a biggie at 24, and her babies were delivered by emergency caesar at 29 weeks purely because of TTS. I like to compare TTS to asthma. A little wheeze in a 12, 16, or 20 week old may mean nothing. (And no wheeze at the same age is no guarantee that nothing will happen in future!!). Then again it may be the first sign of a life-threatening condition. At least you can see/hear a baby wheeze. You can only see TTS on a scan. Don't worry about TTS - just keep an eye on it - because you don't ever want to wonder what might have been. Amy. |
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Sharon
Feb 5th, 2007 - 10:55 PM |
Re: Scans to diagnose TTTS
Hi there, My id boys also had TTTS. TTTS only occurs in id twins. There can be growth discrepancies between twins but I'm pretty sure that this condition can only occur in id twins sharing the same placenta, due to connecting blood vessels. I too say not to get to stressed about the possibility of TTTs occuring but just be aware that it could |
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Amy
Feb 13th, 2007 - 8:38 PM |
Re: Scans to diagnose TTTS
Oh dear - I'm sure no offense was intended. Even this site seems to imply that TTTS only happens to identicals. Did my big twin mysteriously grow huge and have excess fluid, with my little twin having some sort of growth retardation as her fluid was diminishing in tandem? My doc thought TTTS was more plausible. (Although when I was informed of their fused placentas and resulting TTTS I too was originally told that they "must" be identical. If they'd been same sex twins I'd probably still be believing that today). |
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